Severity of Disability and Parental Perception: A Qualitative Investigation
In this study, the perceptions of parents of children with developmental disabilities regarding the severity of disability were tried to be revealed. The studies, which are conducted in order to reveal the perceptions of parents of children with disabilities regarding the severity of disability, generally focus on the main points such as problem behaviors, social adaptation, and language and communication skills. In this research, semi-structured interviews were performed with 8 parents in order to reveal the perceptions regarding the severity of disability. The semi-structured interviews were analyzed through content analysis method. As a result of the analysis, occurring themes regarding the severity of disability perceived by the parents of children with developmental disabilities consist of learning and success, social interaction and adaptation, language and communication, problem behavior, physical difficulties and daily living skills. The obtained findings were discussed in line with the related literature.
Akkök, F., Aşkar, P. ve Karancı, N. (1992). Özürlü bir çocuğa sahip anne-babalardaki stresin yordanması. Özel Eğitim Dergisi, 1(2), 8-12.
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: American Psychiatric Publishing.
Baker, B. L., Mcintyre, L. L., Blacher, J., Crnic, K., Edelbrock, C. and Low, C. (2003). Pre-school children with and without developmental delay: Behavior problems and parenting stress over time. Journal of Intellectual Disability Research, 45(4/5), 217-230. doi: 10.1046/j.1365-2788.2003.00484.x
Berns, R. M. (2010). Child, family, school, community, socialization and support. Wadsworth: Cengage Learning.
Bishop, S. L., Richler, J., Cain, A. C. and Lord, C. (2007). Predictors of percieved negative impact in mothers of children with autism spectrum disorder. American Journal of Mental Retardation, 112(6), 450-461. doi: 10.1352/0895-8017(2007)112[450:POPNII]2.0.CO;2
Bogdan, R. C., & Biklen, K. S. (2007). Qualitative research for education: An introduction to theory methods (5th edition). Boston: Pearson Education, Inc.
Büyüköztürk, Ş., Kılıç Çakmak, E., Akgün, Ö. E., Karadeniz, Ş. ve Demirel, F. (2013). Bilimsel araştırma yöntemleri [Scientific research methods] (14th Ed.). Ankara: Pegem.
Centers for Disease Control and Prevention-CDC, (2016). Community report on autism: From the autism and developmental diabilities monitoring network, 11 sites, United States, 2012. MMWR Surveill Summ, 65(3), 1-23.
Colavita, V. A., Luthra, N. and Perry, A. (2014). Strengths and challenges of children with a developmental disability: A qualitative analysis of parent perceptions. Journal on Developmental Disabilities. 20(3), 80-87.
Diken, İ. H., Çuhadar, C., Diken, Ö., Arıkan, A., Ünlü, E., Çelik, S., Tomris, G., Tuna, D. M., Bozkurt, S., Günden, U. O. ve Çavuşoğlu, T. (2016). Okul Öncesi Öğretmenlerine Yönelik Gelişimsel Yetersizlik Türlerinin Tanım ve Özelikleri [Definition and Characteristics of Developmental Disabilities for Preschool Teachers]. Ankara: Eğiten.
Dovgan, K. N., Nowell, K. P., & Aguilar, J. (2019). Influences on Parent Perceptions of Autism Severity. Focus on Autism and Other Developmental Disabilities, 34(4), 236-245. doi: 10.1177/1088357618815884
Griffith, G. M., Hastings, R. P., Nash, S. and Hill, C. (2010). Using matched groups to explore child behavior problems and maternal well-being in children with down syndrome and autism. Journal of Autism and Developmental Disorders, 40, 610-619. doi: 10.1007/s10803-009-0906-1
Güleç Aslan, Y., Cihan, H. ve Altın, D. (2014). Otizm spektrum bozukluğu tanılı çocuk sahibi annelerin deneyimleri [Living with a child with autism spectrum disorders: Experiences of mothers]. Elektronik Sosyal Bilimler Dergisi, 13(50), 96-111. doi: 10.17755/esosder.41128
Guscia, R., Harries, J., Kirby, N., Nettelbeck, T. and Taplin, J. (2006) Construct and criterion validities of the Service Need Assessment Profile (SNAP): A measure of support for people with disabilities. Journal of Intellectual and Developmental Disability, 31, 148-155. doi: 10.1080/13668250600876442
Hallahan, D. P., Kauffman, J. M. ve Pullen, P. C. (2014). Exceptional Learners: An Introduction to Special Education (12th Ed.). Pearson Higher Ed.
Hastings, R. P., Kovshoff, H., Ward, N. J., Espinosa, F. D., Brown, T. and Remington, B. (2005). System analysis stress and positive perception in mother and father of pre-school children with autism. Journal of Autism and Developmental Disorders, 35(5), 635-644. doi: 10.1007/s10803-005-0007-8
Heward, W. L., Alber Morgan, S., R. ve Konrad, M. (2017). Exceptional children: An introduction to special education (11th Ed.). Upper Saddle River: Pearson, Education, Inc.
Hock, R., & Ahmedani, B. K. (2012). Parent perceptions of autism severity: Exploring the social ecological context. Disability and Health Journal, 5(4), 298-304. doi: 10.1016/j.dhjo.2012.06.002
Johnson, R. B., & Christensen, L. (2016). Educational research: Quantitative, qualitative, and mixed approaches (6th Ed.). SAGE Publications, Inc.
Kasari, C. and Sigman, M. (1997). Linking parental perceptions to interactions in young children with autism. Journal of Autism and Developmental Disorders, 27(1), 39-57. doi: 10.1023/a:1025869105208
Kirk, S., Gallagher, J. J. and Coleman, M. R. (2009). Educating exceptional children (12th ed.). Boston: Cengage Learning, Inc.
Kissel, S. D. and Nelson, W. M. (2016). Parents’ perceptions of the severity of their child’s autistic behaviors and differences in parental stress, family functioning, and social support. Focus on Autism and Other Developmental Disabilities, 31(2), 152-160. doi: 10.1371/journal.pone.0186536
Konstantareas, M. M. and Homatidis, S. (1989). Assessing child symptom severity and stress in parents of autistic children. Journal of Child Psychology and Psychiatry, 30, 459-470. doi: 10.1111/j.1469-7610.1989.tb00259.x
Kuder, S. J. (2018). Teaching students with language and communication disabilities (5th Ed.). Boston MA: Pearson Education, Inc.
Lickenbrock, D. M., Ekas, N. V. and Whitman, T. L. (2011). Feeling good, feeling bad: Influences of maternal perceptions of the child and marital adjustment on well-being in mothers of children with an autism spectrum disorder. Journal of Autism and Developmental Disorder, 41, 848-857. doi: 10.1007/s10803-010-1105-9
McStay, R. L., Dissanayake, C., Scheeren, A., Koot, H. M. and Begeer, S. (2014). Parenting stress and autism: The role of age, autism severity, quality of life and problem behaviour of children and adolescents with autism. Autism, 18(5), 502-510. doi: 10.1177/1362361313485163
Merriam, S. B. (2009). Qualitative research: A guide to design and implemention (2nd Ed.). San Francisco: John Wiley & Sons, Inc.
Morales, G. E. and Lopez, E. O. (2013). Down syndrome beyond the intellectual disability: Persons with their own emotional world. New York: Nova Science Publishers, Inc.
Murdock, G. P. (1965). Social structure (10th ed.). New York: The Macmillian Company.
Odom, S. L., Horner, R. H., Snell, M. E., & Blacher, J. (2007). The construct of developmental disabilities. In S. L. Odom, R. H. Horner, M. E. Snell, & J. Blacher (Eds.), Handbook of developmental disabilities (pp. 3–14). The Guilford Press.
Patton, M. Q. (2014). Qualitative research & evaluation methods: Integrating theory and practice. Sage publications.
Punch, K. F. (2013). Introduction to social research: Quantitative and qualitative approaches. Sage.
Remler, D. K. and Ryzin, G. G. (2011). Research methods in practice: Strategies for description and causation. California: SAGE Publications, Inc.
Selikowitz, M. (2008). Down Syndrome: The facts (3th ed.). New York: Oxford University Press
Smith, J. A., Flowers, P. and Larkin, M. (2009). Interpretative phenomenological analysis: Theory, method and research. London: Sage Publications, Inc.
Türnüklü, A. (2000). Eğitimbilim araştırmalarında etkin olarak kullanılabilecek nitel bir araştırma tekniği: Görüşme. Kuram ve Uygulamada Eğitim Yönetimi, 6(4), 543-559.
Webster Stratton, C. and Hammond, M. (1988). Maternal depression and its relationship to life stress, perceptions of child behavior problems, parenting behaviors, and child conduct problems. Journal of Abnormal Child Psychology, 16 (3), 299-215. doi: 10.1007/BF00913802
World Health Organization-WHO. (2018). 11th Revision of the International Classification of Diseases. Retrieved from https://icd.who.int/browse11/l-m/en#/http://id.who.int/icd/entity/437815624
Yıldırım, A., & Şimşek, H. (2016). Sosyal bilimlerde nitel araştırma yöntemleri [Qualitative research methods in social sciences] (10th ed.) Ankara: Seçkin.
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